The way I do things not my fault. Or is it? I should know by now, surely, that when they ask me what I think, they don’t mean it.
So I have given my view bluntly and with the full force of my honesty. Tomorrow I must revisit the scene of the criminal faux pas, because another day another dollar is my mantra. My manager may or may not hate me. My colleagues might not think I’m weird. However, previous experience tells me that, after three months, the Asperger is beginning to crack through the thin normality I have endeavoured to veneer on myself.
It doesn’t matter if I fit or not, really. I feel like a misfit and I can create an awkwardness from thin air. Once it’s there I wrap myself in it like a safety blanket of bee stings. Being stung I retreat and my cycle pedals furiously into its inevitable descent.
Soon, I will pack my bags. The runner who can’t face the unsure and yet dives headfirst into the unknown will lurch into another incarnation. A new me, contrite and certain that I can hold back, will set forth with an all too temporary trepidation.
If only I could say nothing, how different my life would be. How few opportunities I would have needed. How few avenues I would have ventured down. How few mes I would have needed to create.
My life is my fault. My faults are my life. I should know by now, surely, that the Asperger Path is just the way I do things.
Sometimes I feel like I’m almost invisible. The world is transacting around me and I am there, in my bubble, untouched by the commerce of life.
Get your friendships here. How about a lovely bit of bonding. Who fancies a nice little chat. They buy and sell their time, love and care like market traders but I never quite feel that the offer is aimed at me.
Here in Cambodia, I am used to not understanding. My life is lived in one language, while daily life is transacted all around me in another. The protocols and customs are based in a culture that I understand only superficially. I know that I miss messages and mix messages. Yet, my life has always felt as if I am somehow apart from culture rather than a part of it. The lonely otherness of the traveller is second nature on the Asperger Path.
I enjoy the market place. The overload to the senses is a shock but life, even observed from a bubble, is marvellous in its mess. So I will buy my bits and pieces and play my role. I’ll take a small smile and a bunch of happy being me, please.
I lose myself sometimes. Within that loss I find another me. Forgetting all my traits, I just exist. The bubble is takes me high and then, pop, the euphoria dissipates and I am my real self again.
But oh, those moments lost in music. The rhythm takes me gently before I take the rhythm and we counterpoint on the floor. The music mutates in my head and my body expresses itself without thought.
I feel a smile on my face and it spreads like the sweat on the back of my shirt. Delirious, I care about neither, I just want to consume the music and expel the joy that is swelling inside me. I am alone among a thousand people. Unaware, I dance for and by myself.
An hour can pass or sometimes two before the magic is lost. A different beat brings a sudden reawakening of my self consciousness and I am left, old and sweating. The man who lost himself suddenly finds himself surrounded and the jarring lights of reality are an unwelcome illumination of the scene.
Reality is where I live and I am mired in it, but isn’t he also real. That man who syncopates the floor with his feet and draws heaven to the earth with his arms is not a fantasy. He is just ecstatically lost, lost in the music, lost in his mind and found in the moment.
Live everyday as if it’s your last.
How irresponsible would that be. I am not going to die tomorrow so I’ll make sure I’ve got food, a roof over my head and clean underwear. It’s good not to over plan and we all need to roll with punches, but I hope there are thousands of days between this day and my last.
Live everyday as if it’s important.
Meh. There are the occasional sofa days and duvet days. Don’t let rainy days and Mondays bring you down because they happen with alarming frequency. The ups and downs of being human are not circadian but life repeats and life revisits. Live your life as if you are important. Allow yourself the down times so that when you soar you are truly astounding.
You only live once.
Hell yes. We are born and we die. In between we lead may lives and are many people. I am a friend, lover, teacher, writer, traveller and survivor. My current incarnation is the result of many creations and much destruction. I am an architect and I will continue to strive to be as well constructed as I can be. If today is my last day, I spent it well. It was just an ordinary day, full of living the great and the small.
Travellers on a journey we have happily coincided. This Emerald City is where we three live and teach. We were talking about Aspergers in the classroom, but my colleagues were unaware that I am the Tin Man. Thinking my knowledge was purely professional, the questions came flooding out. Questions reveal so much more than answers.
Do you think he knows he is different? Is he aware how others see him? Why can’t he adapt? Why does he look so sad?
Each question was given to me to answer. Such difficult heartbreaking questions to hear because each was so personal and yet I couldn’t say it. Why couldn’t I tell them? I guess because I fear their observation. I choose to remain a colleague.
I know I am different, but I forget until it slaps me in the face. I am unaware of how others see me. In fact most of the time I assume that they don’t see me. When they do, it usually another slap. I do adapt. I live in the world and I pass for almost normal in almost all situations. The sadness you see is when the world treats me badly. Sometimes it comes crowding into my carefully constructed spaces. It judges and points fingers in my face.
Those questions flooded me. The third person was not a barrier thick enough to deflect them. They told me how “other” I might be labelled. Until I’m brave enough to say I am like him, people will see us as not them. Aspergers might make me feel like a tin man, but sometimes I am just a cowardly lion.
I no longer mark time. Time is very different here. The punctuations I took for granted have gone. Now time doesn’t comma or full stop.
You see things differently at a distance. The detail is lost but the panorama allows each piece a place, and the whole is quite unlike the parts.
Once there were four seasons. Nature kept my clock ticking. Larks and robins, buds and falling leaves, late sunsets and dark mornings, each a reminder and each setting me in a context. Here it’s hot. Sometimes it’s wet. It’s light for breakfast and dark for dinner. A year can pass unnoticed.
The seasons come with much more. Emotionally I used to shift. I was carefree in June, melancholy in November and oh so hopeful in March. Activities would change. Life would move to the garden, the balcony or the beach for the brief halcyon summer before beating a retreat to log fires and drawn curtains. My friends are far from me so birthdays are Facebook updates and Christmas isn’t coming. Now that I am no longer on it, I can see I was immersed in a cultural calendar.
My days run on like badly constructed sentences, weeks are just ill defined paragraphs and without the seasons there are no chapters. I am in a stream of consciousness and living in the now because the passing of my time is no longer marked.
I don’t make friends easily. What I find hard to understand is why I would want to. What is a friend is not someone to love and trust. Friendships are as complex as a well written book and not a throwaway thought you find in a celebrity magazine or an online blog.
Maybe it’s semantics, but for me the word friend is something special. In my mind, it conjures up people who I can laugh and relax with. Someone I can talk to about anything. A person that has and brings meaning to my life. Other people think I should have more friends. Personality surveys score me low on friendliness and gregariousness. I will not apologise because I am not unfriendly nor am I unkind. I just don’t make myself available to all and sundry.
Most of the people I know are distant or are kept distant. I think of them as acquaintances. People to share a coffee or an anecdote in my daily life. My work colleagues are great people and I would do a lot for them. However they are not the people I love or confide in. They are like magazines in a waiting room. They can be picked up and put down and they are not something I have chosen.
I love my friends. I love the small group of people that I share my secret inner world with. Some of my friends are like me and have equally small friend networks but others have vast swathes of friends. What they all have in common is spending time with me one to one and doing quiet things. My few friendships are all unique but each relationship is built on a firm foundation of love, trust and honesty. I know my friends like my my favourite novels. They are there to be read and reread, to be held in my heart with favourite scenes that live in the memory.
We are all different. I will keep my favourite books in my heart always. Not a library, but just few carefully selected titles that have changed my world.
Most of the time I just am. I forget the people surrounding me and I just feel and experience the sensuality of existence. My secret life is lived in full view and I am oblivious to the reactions of those around me.
Being born with a disability, I suspect I’m noticed often. My disability is not crippling or painful. It’s not even terribly noticeable. A funny walk and a limp wrist is how it manifests. It’s so easy to parody and some people are acutely cruel in their observation and mimicry.
Some people think I walk this way because I am gay. I am gay. I also have cerebral palsy. I walk this way because this is who I am.
However I only notice the reactions of others when they intrude into my world. Most of the time I live in my world. I have my few friends and my many pleasures. Not alone or cut off but perhaps at a slight remove from what others deem to be reality. In my spectrum disordered world, I am cocooned in my the beautiful landscapes of my mind. Aspergers is another gift the universe bestowed upon me.
We are all different. We are all unique. We all have intersecting facets that make us who we are. We are born different and now is the time has come to acknowledge our differences, to love our diversity, and to see the beauty of the other.
I am beautiful. You are beautiful too. I’m sorry I don’t notice you more often.
Somethings in life are chosen and others predetermined. We have choices, but they are always within parameters. You might think outside the box but climbing out of it can be harder. You can, and should, question everything, but you can only change a few things. You can’t change who you are but you can change what you do and how you do it.
My happiness is found in the doing of simple things. The joy of waking and seeing a new day, rain or shine. The love of a few good and well trusted friends. A pride in doing the things I do well. The pleasure of eating healthily and taking some daily exercise. These things keep me ticking over with a smile.
My box was quite a package. A touch of autism and a dash of cerebral palsy were combined with the proud peacock flourish of being gay. Life might have been easier, but it wasn’t and I am now wise enough to know I can’t change much about my life, but I can chose how it is lived.
So, be who you are and love yourself as you are, while allowing others the same privilege. In doing this, we choose to make those boxes a little bit easier to think in.
Sometimes you just have to take a leap of faith. Something or someone happens and you, for some reason, decide it’s an avenue you want to pursue.
Life is quite a journey. Birth is followed by education, work, love, rest and death. This mortal coil spins faster as we age, and most of us are far too merry to get off. The Asperger Path has been a happy, but somewhat more disorderly, route through life’s conventions.
Actually, I took a detour long ago, and discovered life could be neither straight or narrow. I broadened my mind, loosened my inhibitions, and allowed myself to be open to opportunity’s knock. I have lived in kinky meanders and loved with spacious permissiveness.
It’s time to leap and faith is my parachute and . If I land safely, I will let you know.
Ooooh. Fallin’ free, fallin’ free, fallin’ free, fallin’ free
Donna Summer is on repeat in the juke box of my mind. It’s time for some free falling because I feel love, conventional, old fashioned, ‘you and me’ love.