Between us, there is never any friction. I am accepted as I am. I love as I do and I feel love in return. Springs of glorious warm love surround me in a world that often seems glacial.
These people, these few people I call friends, they seem to see the world differently. We are not kindred spirits and there has never been another pea in my pod, yet the ties are there. Strong enough to withstand the challenges and soft and pliable enough to not feel constricting.
To other people they just seem ordinary. Leading busy lives and juggling the demands of life, they live in the chaos of normality. I am removed. I part myself and park myself on the edges. I bristle where others are smooth and readily answer from my heart without filtering, purifying or distilling my emotions. These people, my friends, they come and sit a while in my world.
The Asperger Path is straight and narrow. It’s monochromatic on bad days but rainbow disarrayed on happy ones. My friends don’t seem to notice I’m different. Maybe they do and they just don’t mind. They seem immune to the irritation I create in others. We are all unique. Perhaps everyone is on the spectrum and has worries doubts and anxieties.
Maybe Aspergers is no more a syndrome than gregariousness. Maybe suffering from a malaise or being blessed with gifts is actually the same thing. My gift is to be lost in the hot springs and forget the glacier that surrounds me.
Most of the time I just am. I forget the people surrounding me and I just feel and experience the sensuality of existence. My secret life is lived in full view and I am oblivious to the reactions of those around me.
Being born with a disability, I suspect I’m noticed often. My disability is not crippling or painful. It’s not even terribly noticeable. A funny walk and a limp wrist is how it manifests. It’s so easy to parody and some people are acutely cruel in their observation and mimicry.
Some people think I walk this way because I am gay. I am gay. I also have cerebral palsy. I walk this way because this is who I am.
However I only notice the reactions of others when they intrude into my world. Most of the time I live in my world. I have my few friends and my many pleasures. Not alone or cut off but perhaps at a slight remove from what others deem to be reality. In my spectrum disordered world, I am cocooned in my the beautiful landscapes of my mind. Aspergers is another gift the universe bestowed upon me.
We are all different. We are all unique. We all have intersecting facets that make us who we are. We are born different and now is the time has come to acknowledge our differences, to love our diversity, and to see the beauty of the other.
I am beautiful. You are beautiful too. I’m sorry I don’t notice you more often.
The circus is coming to town. Life cannot be planned because things happen that are unexpected, uninvited or even unwelcome. Those of us who try to control our lives end up running around like crazy clowns. So success is never about controlling what we have, it is about managing the unexpected.
Thus life needs flexibility. So what happens to those of us who are rigid and don’t have the social malleability that most of society is born with. We change. We learn. We study the patterns and we analyse the results. It’s learnt behaviour and it’s not intuitive, but it is what we do.
We are the cognitively different, the spectrum reordered, the walkers of the Asperger Path. We bring a new perspective and a different view to life. At our best, we are breathtaking and we must learn to fit in the world and take our proper place. Being born different is my gift from the universe and I intend to make my difference make a difference.
You can be a tightrope walking trapeze artist in the circus of life or a straitjacket wearing lunatic locked in the control asylum.
Me? I’m running away to join the circus.
Sometimes you just have to take a leap of faith. Something or someone happens and you, for some reason, decide it’s an avenue you want to pursue.
Life is quite a journey. Birth is followed by education, work, love, rest and death. This mortal coil spins faster as we age, and most of us are far too merry to get off. The Asperger Path has been a happy, but somewhat more disorderly, route through life’s conventions.
Actually, I took a detour long ago, and discovered life could be neither straight or narrow. I broadened my mind, loosened my inhibitions, and allowed myself to be open to opportunity’s knock. I have lived in kinky meanders and loved with spacious permissiveness.
It’s time to leap and faith is my parachute and . If I land safely, I will let you know.
Ooooh. Fallin’ free, fallin’ free, fallin’ free, fallin’ free
Donna Summer is on repeat in the juke box of my mind. It’s time for some free falling because I feel love, conventional, old fashioned, ‘you and me’ love.
We all see the world differently. Perspectives can change with time and place. However difference can unite us or divide us. It is up to us to decide on that.
I am a gay. That makes me somehow different. In my life, that difference has been the source of intense hatred from some and touchingly profound love from others. Being outside, my brothers and sisters showed me what solidarity can look like. Being outside, sometimes I really needed them. My family never cast me out and indeed, love and acceptance has been more of a motif than hate.
Hate is strong though. The power of seemingly isolated incidents can butterfly effect into a tsunami that crushes self esteem and inhibits self expression. I remember so many of the acts of hate, so vividly. Why then can’t I recall the individual kindnesses with the same focus too.
I am going to change my perspective. Acts of love need to be marked and gratitude needs to be both registered within and expressed without. I am surrounded by love, not hate, and the bubble I float in should not be popped by the occasional small prick.
From today I will see the world differently.
I travel alone. Perhaps we all do. The universe surrounds us but we are here locked inside our sensory, sense making brain. We see, hear,smell, taste and touch the world. However what I am sensing is totally unique and bears no relation to the sensations my neighbour creates.
I travel alone. I am not frightened of my own company. I amuse myself and confuse myself and can even look myself in the eye. An able contortionist, I can pat myself on the back though the need doesn’t arrive too often. I am my own best friend and yet I am not hermetically sealed.
I travel alone. I have left you behind, I haven’t yet met you or maybe our paths will never cross. I have stopped wanting to be an us and I have allowed myself to be me. I will not be lost in the world of compromise where everybody goes somewhere that nobody truly wanted to see.
I travel alone because I am not the centre of my universe. I travel like the stars, a pattern in my path that I have not designed and a rhythm in my life that makes me part of something greater than myself.
I travel alone and yet I am not alone. I both am and am not. I travel alone and in doing so create hundreds and thousands of micro relationships. Each is real and unique and has the potential to generate energy and change. My energy is diffused and suffused into the world and I receive power from all around me. I am a fraction of so many wholes and I am a million beautiful fragments of the people who have touched my life.
I travel alone with the universe
But you seem so normal. I smile because I’ve heard that one before. I know myself and I know what can be found inside and what can not. Sometimes, in my darkest moments, I fear that I am not a real boy.
The superficial is my home. It’s where I excel. I have a veneer to hides my flaws beneath. So in the first few hours, I can seem charming. I am both interested and interesting. It’s when things go deeper that they go wrong.
People have so many expectations. Friendships and relationships are supposed travel some mysterious path that I have rarely managed to navigate. I fail. There is something that I am not providing. I think it might be me.
I feel an emptiness inside because I give all I have and it isn’t enough. My honesty and happiness are not what was being sought and when I see the pain caused, I take it and inflict it on myself. The hurt feeds the sense of emptiness within and fear hardens the shell.
Am I just a veneer with no substance, or perhaps my depths are now so deeply hidden that they have been lost? Please, tell me I am not Pinocchio. I want to be a real boy.
No matter how many times you tell people that you see the world differently, every time they notice it they express some concern. Or maybe expressing concern is one of those concepts I just don’t grasp.
People are often surprised by the things I say or do. My usual response is to assume that as I take full responsibility for my own life, their surprise is an issue for them. John Donne once concluded that no man is an island, but that does not mean that every man is traffic junction.
Sometimes people think they hear the toll of the bell. It might just be the wind chimes of my imagination or the tapping of my thumb on the information superhighway.
I am a little disconnected but I am concerned for my fellow man. However, my communication can sometimes be a little sparse or scrambled. We are all different, special and unique. No man is an island but allow me a moat.
The man sat in his room and wondered. It was Saturday night and he knew the great cabaret of life was being played out on stages as he sat there looking at the walls and contemplating the ifs and buts of his next decision. He doesn’t realise that he is on his tawdry stage just like the rest of us. His one man show may not have pizazz and his monologue, should he ever choose to speak, might be môntone, but he is stripped bare and dazzled in the footlights of existence.
Some people take three hours to get out of the house. The minutiae of each step weighed and analysed with mentally generated flow diagrams to plot the possibilities of an action. If that is not a conceptual piece of performance art worthy of staging then life is not a cabaret, old chum. Life doesn’t pass us by, but it comes in a lot of different shapes and sizes.
Like each of us, he only lives once, so he needs to be certain. He finally makes a decision, certain that his choice is valid. Semi skimmed not full fat milk. Now, shoes or trainers…
I am a brother. It is something that does not take up much time, yet my brother is often in my thoughts. As children, our age shaped the roles we were given and seems to have shaped the men we have become.
He is older than me, and when I was young, he seemed so grown up. I looked to him for guidance and advice. Our home situation was somewhat less than conventional, so an unfair burden was placed on him that I never carried. He was expected to take care of me whereas I was just expected to be younger. He shouldered responsibility at an early age while I skipped through life, almost oblivious to the world around me.
My brother is fifty five years old now, and he has taken care of his wife and their sons. His family has grown up in a safe and loving environment that did not mirror our childhood existence. A stable home, where promises were kept and boundaries were maintained, has produced two happy confident young men. They have a home which is solid, built on love, respect and hard work.
I don't have a home and I have never really settled. I roam about the world, restlessly seeking things I'll probably never find. I would like to know how it feels to share my home and my life with someone. I am fifty and have never lived with a partner. I can only imagine the joys and woes of parenthood and have resigned myself to my solitary life. I have shirked life's responsibilities and I am still skipping. I never have everything I need and yet, thanks to the kindness of people around me, my scrapes are survived. I am still that boy who never has a clean tissue and always has untied laces.
On one level I have always wanted to be like my brother, but I am not. I am the younger son, and I was only ever expected to need looking after. He grew up to be a caretaker and I, perhaps not yet grown up, still take care when it is offered