You only live once they say. YOLO says a generation who have not lived much as yet. I feel I have had many lives before this one. Each different, and each separated, so that my life is more like the different scenes of a play than a novel.
Dancing round the garden with a hole in my sock and my 99p sunglasses, I was a happy child who loved his mum. Bright yet wilful, I found it hard to settle at school and as I started to mature I realised that boys like me loved their mums because the world outside didn’t like fairies in the garden.
With my bleached hair covering half my face I declared to the no one that was listening my theory on music. The B52s were great and obviously Talking Heads were seminal. Grace was thrown in as reference to the cool indie gay I thought I was. He bore no resemblance to the plain fat boy staring at me in the mirror who dreamt of dance floors
Once I had a house with a gate and a privet hedge that required more attention than it got. I worked for the council and let out my spare room to meet the mortgage. I hated life and it seemed life hated me back. I was bored and realised, once again, that if you don’t fit you shouldn’t force it. I stopped going out and just stayed in.
Slovakia was an unexpected move. The grief of my early departed mother was set aside and I tried on some wings. I was no angel but sometimes I felt like a benevolent god in the classroom. I accepted life and being a foreigner, allowed myself to stand out from the crowd in so many ways.
Tired of London…
A decade in the capital was squandered in never ending round of parties and nightclubs. My career soared and so did my anxiety. Each promotion fuelling an ever more chaotic social life and an ever darker horizon. When I left London I moved to the quiet gravelled beaches of the east and walked myself into sanity. I found a sobriety and a calm in the flat landscape with large skies. I thought I’d never leave.
I sold it all. Everything I own can fit in a suitcase. I have nothing. I have no one. I have a freedom that makes me dizzy. My past is gone and here I am living in the moment. Inner calm has been hard won and I exercise my mind to exorcise its demons. The fairy has left the garden behind and dances on the world’s stage. Have I reincarnated myself until I have found nirvana or are there more short stories still to come.
As you like it
I run away from who I am or perhaps run towards the who I want to be. I have only had one life but my goodness I have played all the parts. All the world’s a stage, and even in Shakespeare’s day we were allowed to live multiple lives. So to the YOLO generation I say this – you just don’t know what’s coming next and that, for me is the greatest gift. Live life as you like it and if you don’t like it, change it until you do.
We are born alone, live alone, die alone. My existential existence might be an excuse. I am really an individual or just too scared to trust other people.
I met this man. Just once. Just six and twenty crazy hours of being with someone who accepted me. He didn’t just accept me for being me, though that in itself would be awesome, he accepted me into his life. He moved over and made some space for me and without words he said walk with me a while.
I love words but he showed me in his deeds who he thinks I am. He sees a me I haven’t seen. He knows a someone I had forgotten I once wanted to be. When he left me, he didn’t leave because he lingers in my mind.
I met this man. Just once. I was born alone and I might die alone but I think I might want to walk with him a while. I won’t throw caution to the wind but I might put it away along with my fears and live life. I will meet this man again but he has already changed my existence.
I wake about thirty minutes before the alarm. A cup of tea is made and my bed is returned to. By the time the alarm decides to start my day, I am showered and towelled and a second tea is already half empty. Soon the sun rises and I walk to my workplace.
The banalities of work pass and do not bear mention.
After a swim I return to my house, stopping at the market to purchase a few odds and ends on my way. The setting sun marks the end of my dealings with the outside world. My sofa is comfortable and by nine my head droops.
It is a simple life lived plainly. Routines are set and they are adhered to. I’m comfortable in my ways and my ways are set. Set more like jelly than stone, but the Asperger path likes the known and the familiar.
I am the traveller who travels slowly enough to create routines but far enough for home to be a memory. The autist who fears the routines he craves and rebuilds the life he constantly tries to leave behind.
I wake about thirty minutes before the alarm…
Between us, there is never any friction. I am accepted as I am. I love as I do and I feel love in return. Springs of glorious warm love surround me in a world that often seems glacial.
These people, these few people I call friends, they seem to see the world differently. We are not kindred spirits and there has never been another pea in my pod, yet the ties are there. Strong enough to withstand the challenges and soft and pliable enough to not feel constricting.
To other people they just seem ordinary. Leading busy lives and juggling the demands of life, they live in the chaos of normality. I am removed. I part myself and park myself on the edges. I bristle where others are smooth and readily answer from my heart without filtering, purifying or distilling my emotions. These people, my friends, they come and sit a while in my world.
The Asperger Path is straight and narrow. It’s monochromatic on bad days but rainbow disarrayed on happy ones. My friends don’t seem to notice I’m different. Maybe they do and they just don’t mind. They seem immune to the irritation I create in others. We are all unique. Perhaps everyone is on the spectrum and has worries doubts and anxieties.
Maybe Aspergers is no more a syndrome than gregariousness. Maybe suffering from a malaise or being blessed with gifts is actually the same thing. My gift is to be lost in the hot springs and forget the glacier that surrounds me.
Most of the time I just am. I forget the people surrounding me and I just feel and experience the sensuality of existence. My secret life is lived in full view and I am oblivious to the reactions of those around me.
Being born with a disability, I suspect I’m noticed often. My disability is not crippling or painful. It’s not even terribly noticeable. A funny walk and a limp wrist is how it manifests. It’s so easy to parody and some people are acutely cruel in their observation and mimicry.
Some people think I walk this way because I am gay. I am gay. I also have cerebral palsy. I walk this way because this is who I am.
However I only notice the reactions of others when they intrude into my world. Most of the time I live in my world. I have my few friends and my many pleasures. Not alone or cut off but perhaps at a slight remove from what others deem to be reality. In my spectrum disordered world, I am cocooned in my the beautiful landscapes of my mind. Aspergers is another gift the universe bestowed upon me.
We are all different. We are all unique. We all have intersecting facets that make us who we are. We are born different and now is the time has come to acknowledge our differences, to love our diversity, and to see the beauty of the other.
I am beautiful. You are beautiful too. I’m sorry I don’t notice you more often.
The circus is coming to town. Life cannot be planned because things happen that are unexpected, uninvited or even unwelcome. Those of us who try to control our lives end up running around like crazy clowns. So success is never about controlling what we have, it is about managing the unexpected.
Thus life needs flexibility. So what happens to those of us who are rigid and don’t have the social malleability that most of society is born with. We change. We learn. We study the patterns and we analyse the results. It’s learnt behaviour and it’s not intuitive, but it is what we do.
We are the cognitively different, the spectrum reordered, the walkers of the Asperger Path. We bring a new perspective and a different view to life. At our best, we are breathtaking and we must learn to fit in the world and take our proper place. Being born different is my gift from the universe and I intend to make my difference make a difference.
You can be a tightrope walking trapeze artist in the circus of life or a straitjacket wearing lunatic locked in the control asylum.
Me? I’m running away to join the circus.
Sometimes you just have to take a leap of faith. Something or someone happens and you, for some reason, decide it’s an avenue you want to pursue.
Life is quite a journey. Birth is followed by education, work, love, rest and death. This mortal coil spins faster as we age, and most of us are far too merry to get off. The Asperger Path has been a happy, but somewhat more disorderly, route through life’s conventions.
Actually, I took a detour long ago, and discovered life could be neither straight or narrow. I broadened my mind, loosened my inhibitions, and allowed myself to be open to opportunity’s knock. I have lived in kinky meanders and loved with spacious permissiveness.
It’s time to leap and faith is my parachute and . If I land safely, I will let you know.
Ooooh. Fallin’ free, fallin’ free, fallin’ free, fallin’ free
Donna Summer is on repeat in the juke box of my mind. It’s time for some free falling because I feel love, conventional, old fashioned, ‘you and me’ love.
We all see the world differently. Perspectives can change with time and place. However difference can unite us or divide us. It is up to us to decide on that.
I am a gay. That makes me somehow different. In my life, that difference has been the source of intense hatred from some and touchingly profound love from others. Being outside, my brothers and sisters showed me what solidarity can look like. Being outside, sometimes I really needed them. My family never cast me out and indeed, love and acceptance has been more of a motif than hate.
Hate is strong though. The power of seemingly isolated incidents can butterfly effect into a tsunami that crushes self esteem and inhibits self expression. I remember so many of the acts of hate, so vividly. Why then can’t I recall the individual kindnesses with the same focus too.
I am going to change my perspective. Acts of love need to be marked and gratitude needs to be both registered within and expressed without. I am surrounded by love, not hate, and the bubble I float in should not be popped by the occasional small prick.
From today I will see the world differently.
I travel alone. Perhaps we all do. The universe surrounds us but we are here locked inside our sensory, sense making brain. We see, hear,smell, taste and touch the world. However what I am sensing is totally unique and bears no relation to the sensations my neighbour creates.
I travel alone. I am not frightened of my own company. I amuse myself and confuse myself and can even look myself in the eye. An able contortionist, I can pat myself on the back though the need doesn’t arrive too often. I am my own best friend and yet I am not hermetically sealed.
I travel alone. I have left you behind, I haven’t yet met you or maybe our paths will never cross. I have stopped wanting to be an us and I have allowed myself to be me. I will not be lost in the world of compromise where everybody goes somewhere that nobody truly wanted to see.
I travel alone because I am not the centre of my universe. I travel like the stars, a pattern in my path that I have not designed and a rhythm in my life that makes me part of something greater than myself.
I travel alone and yet I am not alone. I both am and am not. I travel alone and in doing so create hundreds and thousands of micro relationships. Each is real and unique and has the potential to generate energy and change. My energy is diffused and suffused into the world and I receive power from all around me. I am a fraction of so many wholes and I am a million beautiful fragments of the people who have touched my life.
I travel alone with the universe
But you seem so normal. I smile because I’ve heard that one before. I know myself and I know what can be found inside and what can not. Sometimes, in my darkest moments, I fear that I am not a real boy.
The superficial is my home. It’s where I excel. I have a veneer to hides my flaws beneath. So in the first few hours, I can seem charming. I am both interested and interesting. It’s when things go deeper that they go wrong.
People have so many expectations. Friendships and relationships are supposed travel some mysterious path that I have rarely managed to navigate. I fail. There is something that I am not providing. I think it might be me.
I feel an emptiness inside because I give all I have and it isn’t enough. My honesty and happiness are not what was being sought and when I see the pain caused, I take it and inflict it on myself. The hurt feeds the sense of emptiness within and fear hardens the shell.
Am I just a veneer with no substance, or perhaps my depths are now so deeply hidden that they have been lost? Please, tell me I am not Pinocchio. I want to be a real boy.