Category Archives: Aspergers

Steps and stones

He stepped into my private life and had a look around. I hadn’t invited him in and yet there he was. This sort of intrusion must be something I wordlessly offer, for this is not the first time I have been invaded.

I like good conversation. I like to dip my toe in muddy waters and ruminate about the endless possibilities and probabilities that life throws at us. The paths taken, and those forsaken, make good fodder for the random chats I so often have along the Asperger Path.

My public life is lived quite publicly. I am out there, on air and on line broadcasting to my meagre audience. My voice, loud as it may be, is lost in the curiously furious mumbling of the wide webbed world. The chaotic cacophony ensures a bizarrely public privacy. My wood would not be seen for the trees are forming a barrier of popularity I will never hurdle. Judgment is something different. When he judged me, asking why this pattern he has identified repeats, I retreated. His opinion, given as concrete fact, was dropped heavily on my toes and I naturally stepped back. My answer was stony but solid enough to build a wall. Be careful, dear reader for whilst my life is set out before you in the market place I choose what I hawk. What I write is public, but my feelings remain on my side of the counter. Stay if you want or leave, but spare my dipped toes the weight of a crushing opinion.

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A challenge.

I try so hard. I fail. I try and fail and try again. Between me and who I want to be is a lack of loving kindness. I exercise it and yet my anger remains. So here is my apology.

Yesterday I fell. Not metaphorically but literally. Getting out of a boat that just beached itself proved too much. Getting in, I had explained I have mobility problems and was kindly helped from the jetty into the boat. On arrival I was left to my own devices. No ladder to aid me and my wonky imperfect body, and despite asking for help my language skills were not enough to secure it. The fall was spectacular and the pain intense.

After falling I had to get back on the boat. Islands can be tricky like that. For this, a ladder was found and after some delays I headed back with no smile on my face and no thank you uttered.

Once on dry land I was told politely that everything was my fault. I should have understood that at my age and with my disability I shouldn’t have got on the boat. My anger flared and I was left hurt and hurting to make my way back to the hotel.

Loving kindness and gratitude are so easy to demonstrate when all is going right. What I need to learn is how to maintain it when things go wrong.

I am safe. My injuries are superficial. I am not on an island. For these things I should have be grateful yesterday. My anger achieved nothing except causing hurt and pain to myself and others.

I try and fail and try again, no matter how painful the lesson.

The Way

The way I do things not my fault. Or is it? I should know by now, surely, that when they ask me what I think, they don’t mean it.

So I have given my view bluntly and with the full force of my honesty. Tomorrow I must revisit the scene of the criminal faux pas, because another day another dollar is my mantra. My manager may or may not hate me. My colleagues might not think I’m weird. However, previous experience tells me that, after three months, the Asperger is beginning to crack through the thin normality I have endeavoured to veneer on myself.

It doesn’t matter if I fit or not, really. I feel like a misfit and I can create an awkwardness from thin air. Once it’s there I wrap myself in it like a safety blanket of bee stings. Being stung I retreat and my cycle pedals furiously into its inevitable descent.

Soon, I will pack my bags. The runner who can’t face the unsure and yet dives headfirst into the unknown will lurch into another incarnation. A new me, contrite and certain that I can hold back, will set forth with an all too temporary trepidation.

If only I could say nothing, how different my life would be. How few opportunities I would have needed. How few avenues I would have ventured down. How few mes I would have needed to create.

My life is my fault. My faults are my life. I should know by now, surely, that the Asperger Path is just the way I do things.

Market

Sometimes I feel like I’m almost invisible. The world is transacting around me and I am there, in my bubble, untouched by the commerce of life.

Get your friendships here. How about a lovely bit of bonding. Who fancies a nice little chat. They buy and sell their time, love and care like market traders but I never quite feel that the offer is aimed at me.

Here in Cambodia, I am used to not understanding. My life is lived in one language, while daily life is transacted all around me in another. The protocols and customs are based in a culture that I understand only superficially. I know that I miss messages and mix messages. Yet, my life has always felt as if I am somehow apart from culture rather than a part of it. The lonely otherness of the traveller is second nature on the Asperger Path.

I enjoy the market place. The overload to the senses is a shock but life, even observed from a bubble, is marvellous in its mess. So I will buy my bits and pieces and play my role. I’ll take a small smile and a bunch of happy being me, please.

Losing

I lose myself sometimes. Within that loss I find another me. Forgetting all my traits, I just exist. The bubble is takes me high and then, pop, the euphoria dissipates and I am my real self again.

But oh, those moments lost in music. The rhythm takes me gently before I take the rhythm and we counterpoint on the floor. The music mutates in my head and my body expresses itself without thought.

I feel a smile on my face and it spreads like the sweat on the back of my shirt. Delirious, I care about neither, I just want to consume the music and expel the joy that is swelling inside me. I am alone among a thousand people. Unaware, I dance for and by myself.

An hour can pass or sometimes two before the magic is lost. A different beat brings a sudden reawakening of my self consciousness and I am left, old and sweating. The man who lost himself suddenly finds himself surrounded and the jarring lights of reality are an unwelcome illumination of the scene.

Reality is where I live and I am mired in it, but isn’t he also real. That man who syncopates the floor with his feet and draws heaven to the earth with his arms is not a fantasy. He is just ecstatically lost, lost in the music, lost in his mind and found in the moment.

The Yellow Brick Road

Travellers on a journey we have happily coincided. This Emerald City is where we three live and teach. We were talking about Aspergers in the classroom, but my colleagues were unaware that I am the Tin Man. Thinking my knowledge was purely professional, the questions came flooding out. Questions reveal so much more than answers.

Do you think he knows he is different? Is he aware how others see him? Why can’t he adapt? Why does he look so sad?

Each question was given to me to answer. Such difficult heartbreaking questions to hear because each was so personal and yet I couldn’t say it. Why couldn’t I tell them? I guess because I fear their observation. I choose to remain a colleague.

I know I am different, but I forget until it slaps me in the face. I am unaware of how others see me. In fact most of the time I assume that they don’t see me. When they do, it usually another slap. I do adapt. I live in the world and I pass for almost normal in almost all situations. The sadness you see is when the world treats me badly. Sometimes it comes crowding into my carefully constructed spaces. It judges and points fingers in my face.

Those questions flooded me. The third person was not a barrier thick enough to deflect them. They told me how “other” I might be labelled. Until I’m brave enough to say I am like him, people will see us as not them. Aspergers might make me feel like a tin man, but sometimes I am just a cowardly lion.

Metaphor

I don’t like getting my feet wet. I don’t like how it feels. Today it’s raining but it’s still hot so I am torn between the cool comfort of my sandals and the tough impermeability of my walking boots.

The smallest choices are often the most pondered. In my life, I create routines and regularity to help me avoid that endless vacillation that can consume time and mental energy. I sweat the small stuff like plastic micro beads polluting my psychic eco-system. I need to make a decision but right now I’m blogging about it.

Those big decisions that people have, they seem to cause me less trepidation. Moving to Cambodia was done on a whim with no prayer. I just upped my life and landed with my full 30kg allowance and recreated a life. Things have worked out just fine so I must assume I am a resourceful little sausage. I have a job, a roof over my head and there’s healthy food on my table.

So, I can just jump sometimes. I guess it’s fine to get my feet wet, but only when it’s metaphorical. Maybe I should just wear the sandals and see how it feels.

Glacial

Between us, there is never any friction. I am accepted as I am. I love as I do and I feel love in return. Springs of glorious warm love surround me in a world that often seems glacial.

These people, these few people I call friends, they seem to see the world differently. We are not kindred spirits and there has never been another pea in my pod, yet the ties are there. Strong enough to withstand the challenges and soft and pliable enough to not feel constricting.

To other people they just seem ordinary. Leading busy lives and juggling the demands of life, they live in the chaos of normality. I am removed. I part myself and park myself on the edges. I bristle where others are smooth and readily answer from my heart without filtering, purifying or distilling my emotions. These people, my friends, they come and sit a while in my world.

The Asperger Path is straight and narrow. It’s monochromatic on bad days but rainbow disarrayed on happy ones. My friends don’t seem to notice I’m different. Maybe they do and they just don’t mind. They seem immune to the irritation I create in others. We are all unique. Perhaps everyone is on the spectrum and has worries doubts and anxieties.

Maybe Aspergers is no more a syndrome than gregariousness. Maybe suffering from a malaise or being blessed with gifts is actually the same thing. My gift is to be lost in the hot springs and forget the glacier that surrounds me.

Carefully Selected

I don’t make friends easily. What I find hard to understand is why I would want to. What is a friend is not someone to love and trust. Friendships are as complex as a well written book and not a throwaway thought you find in a celebrity magazine or an online blog.

Maybe it’s semantics, but for me the word friend is something special. In my mind, it conjures up people who I can laugh and relax with. Someone I can talk to about anything. A person that has and brings meaning to my life. Other people think I should have more friends. Personality surveys score me low on friendliness and gregariousness. I will not apologise because I am not unfriendly nor am I unkind. I just don’t make myself available to all and sundry.

Most of the people I know are distant or are kept distant. I think of them as acquaintances. People to share a coffee or an anecdote in my daily life. My work colleagues are great people and I would do a lot for them. However they are not the people I love or confide in. They are like magazines in a waiting room. They can be picked up and put down and they are not something I have chosen.

I love my friends. I love the small group of people that I share my secret inner world with. Some of my friends are like me and have equally small friend networks but others have vast swathes of friends. What they all have in common is spending time with me one to one and doing quiet things. My few friendships are all unique but each relationship is built on a firm foundation of love, trust and honesty. I know my friends like my my favourite novels. They are there to be read and reread, to be held in my heart with favourite scenes that live in the memory.

We are all different. I will keep my favourite books in my heart always. Not a library, but just few carefully selected titles that have changed my world.

What We Notice

Most of the time I just am. I forget the people surrounding me and I just feel and experience the sensuality of existence. My secret life is lived in full view and I am oblivious to the reactions of those around me.

Being born with a disability, I suspect I’m noticed often. My disability is not crippling or painful. It’s not even terribly noticeable. A funny walk and a limp wrist is how it manifests. It’s so easy to parody and some people are acutely cruel in their observation and mimicry.

Some people think I walk this way because I am gay. I am gay. I also have cerebral palsy. I walk this way because this is who I am.

However I only notice the reactions of others when they intrude into my world. Most of the time I live in my world. I have my few friends and my many pleasures. Not alone or cut off but perhaps at a slight remove from what others deem to be reality. In my spectrum disordered world, I am cocooned in my the beautiful landscapes of my mind. Aspergers is another gift the universe bestowed upon me.

We are all different. We are all unique. We all have intersecting facets that make us who we are. We are born different and now is the time has come to acknowledge our differences, to love our diversity, and to see the beauty of the other.

I am beautiful. You are beautiful too. I’m sorry I don’t notice you more often.